Following on our April 5 conversation with Rob Talbert at Intuitive Social Horror, Michón Neal joins today's broadcast room to talk with Max about embodied movement, resilience and recovery amidst trauma, and her book Lilith: Time of Toba.
(Segments will be included on this page after broadcast.)
0 - Medicine & Meditation; Silent-ambient zero-point meditation audio (birdsong, natural neighborhood springtime) can be streamed or downloaded from https://t.me/s/DarkMatterMemo (message link coming soon).
1 - Morning Livestream (approx. 0924a, 20200408); look for us streaming from Intuitive Public Radio on Facebook.
E: I think we actually do have some --- I probably won’t get all of them, but we do have some basic principles here...
E: ...One that I was communicating on a mutual aid group yesterday is: Burnout. In other words, do not make yourself the only point of contact for someone with constant needs.
M: That’s so important.
E: Thank you.
Because what happens, no matter how much you care, you will eventually run out of the ability to help them --- and if you’ve made yourself their only point of contact, that will eventually result in you abandoning them when they’re dependent on you and leaving them to find another person to help them.
M: Well that’s why we need a community that is interconnected and can communicate effectively with one another and are listening intuitively…
Oh! I may have bullet points! They’re just like they’re seeds. All the green growth got burned away by death and destruction, but the seeds are here, so… the more I belly laugh, which I’ve done a few times on this call, the more maybe I’ll just be able to spit out those bullet points.
And if I’m broadcasting radio, I’m talking to lots of people, and I’m getting practice repeating things, which is a valid radio real-world skill especially during the apocalypse.
E: Yes yes yes!
M: That is one basic principle that is amazing for having a radio.
Are there more basic principles that you can think of?
E: We’ve said community rather than a single point of contact because of burnout.
Now you have just touched on intuitive listening.
Intuitive listening is two things: One, a way of meeting people’s actual needs rather than the needs we think they have...
M: …(...why would you want to do that?...)...
E: I know, right?
It’s a way of helping people rebuild their neurons after trauma or illness (or traumatic illness). Because when you listen to someone and reflect back to them what they have said, it helps them know what they’re saying.
M: I feel so much relief to hear someone saying that other than me.
E: See, that’s a case in point.
M: Thank you!
So that’s two! What was the last one again?
E: Intuitive listening.
M: That’s so important.
And three is that people who do not have mainstream marketable capitalist skills… have… *because* of that… very valuable information to impart that they deserve to be paid money for… which will enable them to survive without being “a burden” on people who have more mainstream marketable capitalist skills.
M: This is an awesome morning show.
M: I totally forgot what you said. Having skills. Getting paid. What do we call in politics they have words for this, unappreciated or unpaid labor, the labor of women, the labor of prisoners, the labor of disabled people, the label of… I can’t talk. Labels is an interesting part of that conversation I will set aside for another time.
You have been helping to organize this call so wonderfully. And while I will get off the line pretty momentarily, we seem to be right in the vicinity of an outro. What’s the culmination of this conversation? We made a Welsh triad of something. And the third one means that the end of the “episode” is near. So:
Could you just give me a quick recap? Because I don’t remember.
E: Yes! We have three things that we want to communicate to people.
ONE is: Community. Do not make yourself the only point of contact for someone with constant needs. Share those needs with a community, and then you will not burn out and abandon them; and nobody will be too burdened; and nobody will feel as if they are a burden which is good because nobody is a burden. Okay.
Point TWO is: Intuitive listening. Actually listen to people. Reflect back to them what they have said (and check that you’ve understood it correctly). That means (1) you will be able to meet their actual needs, not the needs that you assume they have, and (2), you will help them rebuild their brains after the trauma they’ve experienced.
Okay. Point three! I’m not gonna forget point three.
Point THREE is: People who don’t have mainstream marketable capitalist skills have --- because of their experiences -- incredibly valuable information to contribute that is worth money. And they should be paid for it. Not given charity, but paid for their valuable services.
Those are the three things.
M: I’m gonna go publish this.
E: All right!
M: Thank you!
E: You’re very very welcome!
Max & Evan Discuss Intuitive Community - Intuitive Public Radio
Barest amount of broadcasting today. Are there any snippets we can get out on the air?
Hello there. It’s 1755 in the evening, approaching the 55 second mark. March 31st, 2020. Terribly confronting challenges today --- simultaneous to wondrous occurrences!
With our gratitude to the USDAC --- the U.S. Department of Arts & Culture, which is *not* a government agency, shared its prodigious materials on facilitating Story Circles. Since we at Intuitive Public Radio have been creating Story Circle access for people who couldn’t get to the usual kinds of Story Circles, the passion sure matched up. We’ve launched our ongoing “event” to begin today, March 31st, in conjunction with The Poor People’s Campaign: A National Call for Moral Revival, the USDAC, and this sixth annual People’s State of The Union.
Our event begins March 31st and never stops. Whenever you hear or read this, we’d like to invite you to join us.
You can find out more by visiting Intuitive.pub/StoryCircle, and I hope you will. Any excuse we can muster to keep doing what we’re doing --- and reasons for joy!
We have published the Joint Statement on COVID-19 and Persons With Psychosocial Disabilities at anchor.fm/NotesOnRefuge, and I’d like to include the same segment here at anchor.fm/Intuitive as well.
Please record your comments to share with us at anchor.fm/Intuitive/message. We’re interested to know more about your experiences.
I am reading my highlighted excerpts from the Joint Statement on COVID-19 and Persons with Psychosocial Disabilities published by Tina Minkowitz on March 26, 2020 at Mad In America dot com. Please find the whole text at this Mad In America link, which we’ve included in our episode notes at Intuitive.pub/Notes, Intuitive.pub/Radio, and Intuitive.pub/Text.
Joint Statement on COVID-19 and Persons with Psychosocial Disabilities
Tina Minkowitz, Esq.
March 26, 2020, Mad In America dot com
' Meanwhile, the community of people with lived experience of psychosocial disability or psychiatry has been connecting in all the ways we can, especially online, to provide peer support and share information. Our love, creativity, and solidarity are needed now more than ever and show us our strength in the midst of crisis.
Regional and international organizations have come together in this global pandemic to issue a joint statement making recommendations to governments on how to respect and ensure the human rights of people with psychosocial disabilities who are among the groups that are more vulnerable to human rights violations as well as infection with and severity of the illness.
The Center for the Human Rights of Users and Survivors of Psychiatry has dedicated a webpage to this joint statement, with downloadable versions in English and Spanish. Other translations will be added as available.
The complete statement in English, composed jointly by the groups listed, is below.
-Tina Minkowitz '
. . . ' We, persons with psychosocial disabilities from regional and international organizations across the world, are concerned about the vulnerability of persons with psychosocial disabilities to COVID-19 infection and deaths. “Persons with psychosocial disabilities” refers to a historically discriminated and marginalised group that includes users and ex-users of psychiatry, victims-survivors of psychiatric violence, mad people, voice-hearers, and people with psychosocial diversity.
People with psychosocial disabilities may be at increased risk of contracting coronavirus as a result of:
their being placed and/or deprived of their liberty in psychiatric units and institutions, social care institutions, vagrancy homes, unregulated and informal ‘shelters’, jails, prisons, and correctional facilities, where they are unable to exercise social distancing as per their will and preferences;
the inherent risk of infection in these environments, exacerbated by their being overcrowded and unsanitary, and places where ill-treatment tends to occur;
barriers in accessing health information, including lack of information in plain language and communication support;
barriers in implementing preventive hygiene measures due to poverty, unequal access to resources within households and homelessness;
mistreatment and abuse;
lack of social support networks and inclusive communities; and
the systemic discrimination against persons with psychosocial disabilities, especially of women, children, older persons, LGBTQIA+ persons, indigenous persons, persons of diverse race, colour, descent, caste, national or ethnic origin, persons of different religious affiliations, persons with other disabilities, and other groups otherwise facing multiple and intersectional discrimination.
People with psychosocial disabilities may also be at increased risk of developing more severe symptoms and dying due to:
poor nutrition, healthcare and sanitary conditions in psychiatric units and institutions, social care institutions, group homes and prisons;
weakened immune systems due to poor nutrition, neglect, institutionalization, and homelessness, including in children and older persons with psychosocial disabilities;
long-term consequences of physical, psychological and sexual violence and abuse, particularly against women with psychosocial disabilities;
reluctance to access the health system due to experiences of discrimination, dismissiveness, neglect, violence, and traumatization in that system;
underlying health conditions such as diabetes and hypertension caused or exacerbated by psychiatric drugs, often administered against people’s will or under coerced consent; and
barriers in accessing healthcare and lack of health insurance coverage.
States have the responsibility under international law to respect and ensure the human rights of people with psychosocial disabilities on an equal basis with others. This responsibility is heightened during a national and global emergency, such as the COVID-19 pandemic. The vulnerabilities highlighted during the pandemic as a result of structural discrimination, discriminatory legislation, and practices of exclusion and violence both in communities and in medical and social care settings, must be taken into account and remedied both during the emergency and afterwards.
We remind states that the Convention on the Rights of Persons with Disabilities requires states to abolish involuntary admissions and treatment in mental health settings and to release those detained and treated against their will under such regimes. This obligation is not suspended during the COVID-19 pandemic, as discriminatory detention is never justified, nor is the administration of mind-altering treatments against a person’s will.
We call on national and local governments to implement the following measures:
Drastically reduce the number of people in psychiatric units and institutions, and institute a moratorium on involuntary admissions. Ensure that no one is compelled to remain in such settings against their will, where they are at greater risk of infection, more severe illness, and death.
Urgently implement sanitary and preventive measures to avoid infections in psychiatric units and institutions, social care institutions and group homes, including environmental cleaning and disinfection, air circulation, regular hand hygiene and free access to sanitary supplies such as soap, hand sanitizer, toilet paper, and paper towels. People should not have to go to a centralised place to get sanitary supplies. Staff must be required to comply with all sanitary and preventive measures.
Stop the use of seclusion, restraints, non-consensual medication, and any restriction on using the lavatories in psychiatric units and institutions. In addition to being contrary to people’s dignity and integrity, these practices inevitably generate unsanitary conditions and cause severe stress and physical deterioration, resulting in weakened immunity.
Provide people in psychiatric units, institutions and group homes with access to the latest information about COVID-19, and enable them to keep in touch with their friends and family. People should not be banned from leaving their rooms or having contact with the outside world as a way to prevent infections. While preventive measures to avoid infections from visitors are needed, blanket policies barring visitors are disproportional and can expose people to further abuse and neglect. Alternative means of keeping in contact, such as telephone and Internet, must be allowed without restriction.
Drastically reduce the population in jails, prisons, and correctional facilities, including by releasing those who are in pre-trial, imprisoned for non-violent offences, or scheduled to be released soon, including persons with psychosocial disabilities on an equal basis as others.
Ensure in each and every case that people deprived of their liberty and those in congregate settings are tested in a timely manner, given their differential vulnerability, and that all such settings implement proper sanitary and preventive measures. When an outbreak occurs in an institutional setting, those affected must be moved to competent healthcare facilities, and the rest should be removed from the infectious environment. Any quarantine efforts must not result in persons being put into more restrictive environments, such as solitary confinement.
Ensure that persons with psychosocial disabilities have equal access to testing, healthcare and public information related to COVID-19. Quality healthcare should be provided to those infected without discrimination of any kind, and regardless of health insurance coverage. Persons with psychosocial disabilities should not be diverted from mainstream hospitals to psychiatric units and institutions for treatment, where healthcare for COVID-19 is often of a lower standard.
Public restrictions based on public health, and actions of law enforcement and security personnel, must not discriminate in any way against persons with psychosocial disabilities. Psychiatric coercive measures must not be used as any part of the response to COVID-19. Human rights standards and mechanisms offering protection to persons deprived of their liberty and those in congregate settings, including those in psychiatric units and institutions, must remain in effect and not be reduced as part of emergency measures.
No one should be compelled to take psychiatric drugs or other treatments that inflict suffering and that compromise their health or immune systems. Compulsory treatment orders must be lifted, and no new ones introduced, as required by international law.
Ensure persons with psychosocial disabilities are not discriminated against in accessing the temporary measures implemented by governments to ensure the continuity of services during the COVID-19 outbreak, including education and social protection programs.
Ensure continued access to support for people experiencing distress or unusual states of consciousness during the COVID-19 outbreak, including through call-in and online psychosocial support and peer support, based on respect for individual will and preferences.
Step up efforts to develop a wide range of community-based services that respond to the needs of persons with psychosocial disabilities and respect people’s autonomy, choices, dignity, and privacy, including peer support and other alternatives to conventional mental health services.
Guarantee voluntary access to psychiatric drugs during the COVID-19 outbreak for those who want them, and offer support to anyone who wants to come off their medication or experience home-based withdrawal.
Prepare and encourage communities to be supportive of one another in an inclusive way, including of persons with psychosocial disabilities, during the COVID-19 outbreak. This is especially important since mandatory quarantine, home confinement and information overload may result in heightened states of distress.
Provide practical support, such as support with obtaining food and supplies, for people with psychosocial disabilities who may be unable to leave their homes due to quarantine or experience difficulty with leaving home during this period of heightened concerns about contamination.
Consider flexible mechanisms to authorize people with psychosocial disabilities to be able to leave their homes during mandatory quarantines, for short periods and in a safe way, when they experience particular difficulty with home confinement.
Adopt additional financial measures to support people with psychosocial disabilities who may need to self-isolate during the COVID-19 outbreak, particularly those who live in poverty, or are unemployed or self-employed.
Encourage media to report responsibly and accurately about the COVID-19 outbreak and the general population to exercise critical thinking and judgment when reading and sharing information on social media platforms.
Provide access to domestic violence information and services to support people, including children, experiencing abuse and violence at home. People with psychosocial disabilities, of any age, may experience increased risk of abuse and violence during home quarantine or home isolation.
Conduct community outreach activities to identify and rescue persons with psychosocial disabilities deprived of their liberty or ill-treated at home or within communities, including by shackling and pasung* and provide adequate support to them in a manner that respects their human rights.
Ensure access by homeless people, including those with psychosocial disabilities, to preventive measures against COVID-19 infection, such as access to well-supplied and clean sanitation facilities, as well as testing and treatment, without discrimination, and in a manner that respects their human rights. Governments must ensure that people with psychosocial disabilities who are homeless during the period of social isolation are not mistreated by authorities and provided with water, food, and shelter on equal basis with others.
Guarantee the continued provision of harm reduction services, such as needle and syringe programs and opioid substitution therapy, to prevent the spread of COVID-19 among drug users.
Consult and actively involve persons with psychosocial disabilities and their representative organizations in the state response to the COVID-19 outbreak.
Involve persons with disabilities and their representative organizations in the independent monitoring of institutional settings. '
Joint Statement on COVID-19 and Persons with Psychosocial Disabilities
Tina Minkowitz, Esq.
March 26, 2020
I’ve just read my highlighted excerpts from the Joint Statement on COVID-19 and Persons with Psychosocial Disabilities published by Tina Minkowitz on March 26, 2020 at Mad In America dot com. Please find the whole text at this Mad In America link, which we’ve included in our episode notes at Intuitive.pub/Notes, Intuitive.pub/Radio, and Intuitive.pub/Text.